Too much time has passed since I last wrote. I’ve made some big decisions, met some incredible people, and lived some remarkable experiences. Where do I begin??
About six weeks ago, I met with two different teams of breast and plastic surgeons, who had been referred to me by my girlfriends, all pleased as punch with their new, beautiful cancer-free breasts. The first team was in New York City at Memorial Sloan Kettering Cancer Center. I couldn’t sleep one wink the night before my first consultation. I felt like an over-anxious five-year-old on Christmas Eve, awake all night with too much excitement and anticipation. By the time my alarm sounded at 5:30am, I jumped out of bed, threw on my pink wardrobe, and was ready to go within minutes. The day had finally come when I’d meet with a breast surgeon and discuss how a sharp metal scalpel could release me from the shackles of hereditary breast cancer. I want nothing more than to be set free, and this doctor held the key.
The doctor greeted me with a big, warm smile and a firm handshake. I was afraid she’d look at my young face, grimace and begin drilling me on my decision. But she never questioned me, not once. In fact, this esteemed breast surgeon said it made perfect sense so long as I felt comfortable. I guess comfortable is one word for it. Ecstatic, anxious, eager, and excited are word that constantly fill my mind.

Signing my consent for a double prophylactic nipple-sparring mastectomy. How good it felt to make this decision for myself, on my own terms, without cancer breathing down my neck. What an empowering experience to save your own life!
And that morning I felt so comfortable that I eagerly signed off my consent for the surgery the minute she left the room. January 10, 2010 would be the day when I’d wake up from a four-hour surgery, still groggy from anesthesia, and realize that I’d done it. I’d beaten off breast cancer before it ever had a chance to rear its ugly head. I can only imagine the pride that I’ll feel, knowing that I saved my own life. I’m smiling just thinking about it!
The following week my mother and I met with a breast and plastic surgeon at Georgetown University Hospital just to get a second opinion. I live only minutes from the hospital and used to volunteer in the breast surgeon’s office, so I figured it was worth a shot.
It was love at first sight. Dr. Shawna Willey had me the moment she walked through the door. As Director of the Betty Lou Ourisman Breast Health Center at Georgetown University Hospital, Dr. Willey has a fair amount of experience as a breast surgeon underneath her belt. In fact, she performs well over 100 mastectomies every year, and a decent number of these surgeries are preventative. Dr. Willey spent nearly an hour with me, discussing the different types of incisions she could make, the types of tissue she would be removing, and the setbacks and advantages to keeping my nipples.
My nipples was a sensitive topic. When I first decided to have the mastectomy, I figured I would remove my nipples because, heck, I might as well. If I was going to carry through with such a radical procedure with the sole purpose of reducing my risk, I should reduce every last bit of it that I possible could. I felt that by keeping my nipples, I would leave behind too many breast cells that could later turn on me with a vengeance.

Me meeting with Dr. Willey's *incredible* nurse at Georgetown University Hospital before the consultation with the surgeon. I was already loving the staff and their impressive expertise, as well as their doting attention!
But both the New York breast surgeon and Dr. Willey encouraged me to give my nipples a second chance. Dr. Willey said that she used to never allow her patients to keep their nipples, that the nipple-sparring procedure was at first considered blasphemous in the medical community. But she’s done her homework over the years and feels that it’s a perfectly safe, acceptable option, especially for someone as young as myself.
When Dr. Willey presented the case for my nipples, I felt nothing but relief. I was willing to remove them and reconstruct a new set, but I really grieved the thought of parting with them. Unlike my breast tissue, my nipples have always been with me, even as a little girl. By removing them, I was making one more sacrifice to this battle against my genes. I was willing to do it, but it made me happy to think I could keep this intimate piece of me and still sneer in the face of breast cancer. Hah!
The plastic surgeon, Dr. Spear Scott, was equally impressive. Dr. Spear spent another hour with me, drawing on my breasts, showing me the incisions he could make and the reconstructive benefits of each. The incisions the doctors make at Georgetown University Hospital are slightly larger than those made at Memorial Sloan Kettering in New York. But I’m not willing to risk it, seeing that I have enough risks already. If Dr. Spear thinks he needs a larger incision to get out as much breast tissue as possible then that’s what we’re going to do!
Dr. Spear also discussed a few of my options for implants. Here’s the thing, I want my breasts to pop afterthis. If I’m going to remove my breasts and endure months of reconstruction, I want the sexiest, perkiest boobs in the market. They may look fake, but that’s because they will be. I’m not one to put on pretenses anyway. I can’t wait for the final product!
Now I’m left to wait. Dr. Willey and Dr. Spear’s offices do not allow anyone to schedule surgery until it’s at least three months out. Since I will have the surgery in January, I have a good three months to wait until I can mark a date on my calendar. In November, I’ll meet with both doctors again just to solidify plans and procedures. Then it’s show time.
I wonder how I’ll feel in those few remaining months leading up to the surgery. How will I feel as I walk into the operating room and lay myself down on the table? How will I feel when I wake up to realize that I’ve actually been set free, that I’ve defied my destiny and can go on living my life? How will it feel to be normal, like so many other women, and not live with breast cancer constantly looming in the near distance? How will it feel to rescue myself and become my own greatest hero? Will I ever be afraid again? Will I live my life differently, more courageously and boldly?
I think the greatest gift that we can give in life is inspiration. It’s the gift that keeps on giving. And, through this process, I’ve inspired myself on so many occasions to take that risk, go on that date, create new relationships, and to keep dreaming big, because I choose life.

11 comments
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July 16, 2010 at 12:46 pm
Steph H
I can’t recommend nipple-sparing enough. For me, at least, keeping my nipples has been so essential to the emotional and psychological recovery from surgery. My breasts make look different now (and, unlike you, I’m not a fan of the fake boobed look, and I still have a hard time with the fact that though my reconstruction is superlative, my new boobs are in no danger of being called natural-looking) but at least I recognize the skin they are stretched over. I remember waking up from surgery, woozy from the anesthesia, and peeking down my hospital gown and thinking “Oh my god, that’s still me. I recognize my body despite the incisions and bruises.” And that was all because I chose to keep my nipples. So I say go for it. You definitely won’t regret it.
Cheers, Steph
July 16, 2010 at 1:43 pm
claudiagilmore
Thank you so much, Steph! It helps so, so much to hear from other women who can speak from experience. I never thought about it like that before – being able to still recognize my body despite the changes it will have gone through. I like that a lot
Thank you again for sharing with me!! I’ll be thinking of you!
July 16, 2010 at 1:07 pm
Elizabeth Vivenzio
Wow! Your depth of character, Claudia, is fascinating! You certainly will inspire others, especially young women like yourself, who are making this decision in their 20s.
The rewards you will reap on this mission will fill your life with tremendous fulfillment and satisfaction. Thank you for selflessly sharing your story with us and baring your soul. It is a privilege to read this blog and follow you on your journey!
July 17, 2010 at 12:25 am
rachel from canada
omg. what a poignant post. the way you word your experience and hope is so empowering. i don’t know why i still have this feeling of shame around my decision. it’s like i did this to myself…but in reality my genes and losing my mother so young to breast cancer did this to me. i did not have a choice.
i will return to this post when ever i am feeling down. your words and view point have completely lifted my spirits. thank you so much! between you and the beauty and the breast project ( http://www.beautyandthebreastproject.com/index2.php )i came across it has been an inspiring and empowering day!
thanks for the update!
rach
July 17, 2010 at 1:48 pm
claudiagilmore
Wow, Rachel, thank you so much!! I think your feelings are completely valid and really quite normal. There are times when I get angry, when it seems unfair that we have to endure so much just be on an even playing field with the rest of the population in terms of our cancer risk. Although it makes me so, so happy to think that my words have helped you find a different perspective. I’ve met some really tremendous, courageous, empowering women along the way who have role-modeled for me what it’s like to take this experience and make the very most from it. They’ve been my inspiration and it really warms my heart to see that inspiration making its way to you.
Lots of love!!! xoxox
July 25, 2010 at 6:18 pm
Chuck
Hey lady! Found my way over here finally and can’t tell you enough how I’m totally rooting for you. You have my prayers and my support!
July 26, 2010 at 1:28 am
claudiagilmore
Thanks so much, Chuck!! That means a lot! I hope all is well with you, Kat and your family! Hope to see you soon!
August 9, 2010 at 6:55 pm
Nipples
Wow, thumbs up for you for sharing your experience!
keep us with updates
August 10, 2010 at 10:17 pm
Joi Morris
Claudia,
You are in great hands, but the waiting is tough. I had my prophylactic oophorectomy last week and was totally frustrated when I could not set the date back in the spring when I finally made the decision. I felt so much better once the surgery date was on the calendar and set.
Looking forward to following more of your journey.
Joi
http://positiveresultsthebook.blogspot.com/
August 11, 2010 at 1:53 am
claudiagilmore
Joi, I couldn’t agree with you more! Ever since I made up my mind about this in March, I’ve been itching just to get ‘er done! I wish there was a special time warp I could get into so January could come sooner. I think having a surgery date will also make me feel a lot better. How are you feeling after your own surgery? My mother had an oophorectomy a couple of years ago, and even though those ovaries are little, they sure do a lot for the body – a lot of things you don’t even realize until they’re gone. I hope your recovery is going well, and I’ll be writing with more updates soon! xoxo
August 25, 2010 at 7:41 am
sian
Hi Claudia, Just read your story. I was googling risks about keeping nipples when having propylactic surgery when I came across it. I am in my 40′s and have lost so many members of, my family to breast cancer, including my mum, her sister, my great gran, great aunt and close cousin.
I discovered after testing that I had the BRCA 2 gene, as does one of my daughters. This was about 18 months ago.
Like you I spoke to a fantastic team of specialists at Guy’s Hospital in London. The breast specialist explained to me that due to the aggressive cancer that has taken my family and my age, I was at a 85% of developing at any time. “ticking time bomb, basically”. There was no decision to be made really. I could take my 15% of not developing cancer or my 85% chance of getting it and dying young like many of my family.
It took me only minutes to make my decision and booked it for six months time when I had completed my college course. This was last June 2009.
I must admit I was terrified and very tearful on the morning of my op. Since I knew my boobs were going, I had become quite attached to them.
Don’t remember anything for about 8 hours but when I woke up my daughters were sitting with me. It was done.
Unfortunately, the op wasnt as straight forward as I’d hoped. My skin had been too delicate and thin to put the permanent implants in. The surgeon explained that he’s put temporary tissue expanders in. I was taken down to a size 34 b and had to go back every 2 weeks to get them expanded until the skin had stretched slowly back to its origanal size and strenghtened. The tissuse expanders had small ports just under the skin where saline was injected.
I could have had the final implants put in after three months but decided to leave it until this March 2010, when I was on Easter break from university.
Like you I felt quite elated. How lucky I was to be given this opportunity to basically, probably save me from the same fate as my family. Also how lucky my daughter is to have the knowlege to make an informed decision in a few years time, when the time is right for her.
I have no regrets what-so-ever. I now have a new pair of upright boobs including nipples. It took a bit longer to get there than I had anticipated but everybody’s different.
My ovaries are due to go next Easter break and then I should be cancer risk free.
It has been an empowering experience and I wish you well. You Have made the right decision.
I am on facebook uk.
Lots of luck to you and positive thoughts
Sian